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How Getting Organized Benefits Your Child

09/27/2015 04:25PM, Published by Hood Magazine, Categories: Parenting, In Print, Today




By South Dakota Parent Connection 

 


Your family may interact with many agencies and providers: special education staff, instructional aides, therapists, pediatricians, behavioral health providers, and more. For parents of children with special needs, good record keeping promotes informed choice, reduces the stress of navigating multiple systems, and builds confident, skilled, and effective advocacy.

 

Effective advocacy requires documentation: When primary providers are on leave, your records can provide critical updates to professionals filling in for the doctor, counselor, or teacher. Your records can demonstrate why certain IEP goals for your child are needed, which services need continuation, and which are not beneficial. Clear, chronological, accessible records give credibility to a request for a second evaluation or additional therapies. Records of what works for your child may lead to a positive behavior intervention plan that promotes school success and prevents suspensions. For parents applying for Supplemental Security Income (SSI) for a child, the process seems less complex when you have records of dates and diagnoses.

 

Your effective, record-based advocacy can be an important model for your child. Teens and young adults are planning their futures and learning about employment, higher education, and adult healthcare systems. They will take on your job of navigating public agencies with heavy caseloads. They will need to know how to file an insurance company appeal and how to secure identification necessary for landlords and employers.

 

South Dakota Parent Connection has two organizational tools for families. The Folder of Information of Life Experiences (FILE) is a compact, portable storage system. The FILE’s labeled sections and checklists efficiently organize a complex array of documents: family records, developmental history, medical therapies, IFSP/IEPs, letters and contact information for professionals, and evaluations. The MyFILE is as portable and convenient and addresses the needs of youth who are learning independence and self-advocacy. The FILE is available, free of charge, to any South Dakota family with a child who has a disability or special health care need. The MyFILE is available to youth through YOUth Retreats, fun and information training events for youth and a parent(s). 



organized advocacy South Dakota Parent Connection


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  • Toddler Time

    04/06/2017
    09:30AM — 11:30AM

    If they can walk, they can jump! Toddler Time at Sky Zone is a special time just for the little o...


  • Little All Stars

    04/06/2017
    10:00AM — 10:50AM

    -Ages: Walking - 6 years -10 punches per card -Cards do not expire


  • Toddler Art Out of this World!

    04/06/2017
    10:15AM — 11:00AM

    Toddler Art: Nature Creations  - 4/6/2017, 4/13/2017 & 4/20/2017 After a long winter indoors, i...


  • Toddler Art: Nature Creations

    04/06/2017
    10:15AM — 11:00AM

    After a long winter indoors, it will be nice to celebrate nature as the weather warms up. Create ...


  • New Baby & Me

    04/06/2017
    01:30PM — 03:30PM

    This group for new moms and their babies meets weekly. Moms can join in open discussion on topics...


  • Sanford PROMISE Community Lecture Series

    04/06/2017
    05:30PM — 06:30PM

    Science minded individuals in our community can learn about the science research being performed ...


  • One Glass Too Many Cake at Sugars

    04/06/2017
    06:30PM — 08:30PM

    Cake and wine go together...right?? On this fun cake, the wine glass has tipped right over and dr...


  • Playgroup for Toddlers and Preschoolers

    04/07/2017
    10:00AM — 12:00PM

    Play Groups are specifically for kids and their caregivers. Gather your friends at our “house” to...


  • Fun and Fit Day for children 6 and under

    04/07/2017
    10:00AM — 12:00PM

    Ride, run, jump, and jam! Join Sioux Falls Parks and Recreation and participate in fitness-relate...


  • Easter Bunny at Sioux Empire Mall

    04/07/2017
    11:00AM — 08:00PM

    IT'S TIME FOR EASTER BUNNY PHOTOS He'll be waiting for you Center Court. Simply go to simon.noe...


  • Pavilion Free First Fridays

    04/07/2017
    05:00PM — 08:00PM

    Join us for Free First Fridays, whether you are new to the area, new to the Pavilion, or even a r...


  • Free First Friday

    04/07/2017
    05:00PM — 08:00PM

    Join us for Free First Fridays, whether you are new to the area, new to the Pavilion, or even a r...


  • Little All Stars

    04/07/2017
    06:30PM — 07:20PM

    -Ages: Walking - 6 years -10 punches per card -Cards do not expire


  • Rodgers + Hammerstein's CINDERELLA

    04/07/2017
    07:30PM — 10:00PM

    Rodgers + Hammerstein’s CINDERELLA is the Tony Award®- winning Broadway musical from the creators...



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