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Families That Inspire: The Johnson Family

09/25/2014 09:43PM ● Published by Hood Magazine

Gallery: The Johnson Family [5 Images] Click any image to expand.

What is Dravet syndrome?  

Dravet syndrome is a rare and catastrophic form of intractable epilepsy that usually begins before age one. Initial seizures are most often prolonged events, and in the second year of life other seizure types begin to emerge. Development remains on track initially, with plateaus and a progressive decline typically beginning in the second year of life. Individuals with Dravet syndrome face a higher incidence of SUDEP (sudden unexplained death in epilepsy) and have associated conditions, which also need to be properly treated and managed. Some of the associated conditions include behavioral and developmental delays, delayed language and speech issues, sleeping difficulties, and disruptions of the autonomic nervous system (which regulates things such as body temperature and sweating). Children with Dravet syndrome do not outgrow this condition, and it affects every aspect of their daily lives. Dravet syndrome is a genetic condition usually caused by a mutation in the SCN1A gene, which creates sodium channels in the brain. Current treatment options are extremely limited and the prognosis for these children is poor.

When did you first find out about your child's diagnosis? How did you decide what to do next?

Luella had her first seizure at nine months old on August 9, 2010. Prior to that she was a completely healthy baby girl. The doctors thought Luella’s seizure was probably just due to a fever and she might not ever have another one. When the seizures kept happening and the medications weren’t helping, we decided to seek out other advice. We ended up at the Mayo Clinic in Rochester, MN and it was there that Luella was diagnosed with Dravet syndrome almost a year after her first seizure. We knew they were testing Luella for Dravet and we had done some research while waiting the three months for the test results. When the doctor called and told us that the test was positive for Dravet, it was devastating! We had read the stories – and the majority were not good. As much as we had hoped for something different, we could now focus our efforts on doing everything we possibly could to help Luella. We learned that one of the country’s best Dravet doctors was located not too far away at Gillette Children’s in St. Paul, MN.  Thankfully we were able to get Luella in to see her and now she sees a neurologist as well as a sleep specialist, orthopedic doctor and neuropsychologist.

What was your family's course of action?

Having a child with a severe medical condition is not what we had in mind when we imagined our family. It is stressful, emotional and tiring. The one thing we’ve had to fall back on through all of this is our faith. Without that we would not be where we are today. So many people pray for Luella and our family and with that we are able to move forward and face the weekly seizures and daily struggles.

Part of dealing with Luella’s condition is doing everything we can to find a cure! We work hard to create awareness for Dravet syndrome and epilepsy in general. The only way we are going to get a cure for Luella is to make sure people know about it. Whenever the opportunity arises I try to make myself available to educate people on epilepsy and Dravet syndrome. This year was the very first International Dravet Syndrome Awareness Day on June 23. To help raise awareness I did “a Cake 4 a Cure” fundraiser/raffle, and we were able to send $1500 to the Dravet Syndrome Foundation to help with Dravet syndrome research. Jim’s office has helped with a couple of fundraisers for the Epilepsy Foundation of Minnesota, too. Our community support has been tremendous! I designed some purple t-shirts with Luella’s handprints made into a butterfly (the symbol for epilepsy) and sold them to friends and family to help raise awareness and for people to show their support to Luella. We sold over 200 shirts! It’s so fun to be around town seeing Luella’s shirts!

What role did your child's school/teachers play?

Since Luella had her first seizure when she was so young, she really wasn’t involved in school yet. Once we knew that we were dealing with Dravet syndrome, the school was immediately involved. We were so impressed by the services offered to Luella. We are extremely fortunate to live where we do. Luella currently receives speech, OT and DAPE services.

Are there any resources you recommend?

There are many online epilepsy organizations that are great to connect with. A couple that we visit often are the Epilepsy Foundation - http://www.epilepsy.com/ and Cure.org.

For more specific Dravet syndrome resources, the Dravet Syndrome Foundation is the place to go at dravetfoundation.org. The Dravet syndrome community has some Facebook groups as well to connect with other families. There is a Dravet syndrome conference held biennially that offers some great resources for families, as well as a way to connect with others face to face who are dealing with some of the same things you are dealing with. We were fortunate that the Dravet conference was held in the Twin Cities in 2012 and we were able to attend. This past summer it was in Chicago and only Jim was able to go, but we highly suggest getting to a conference if you are able.

We were surprised that there weren’t any local support groups for those with epilepsy and their caregivers. I decided to start a facebook group for local families affected by epilepsy. You can find us on facebook at Sioux Falls Area Epilepsy Support Group.

What advice do you have for other parents?

One thing that we learned early on in this process is that you need to advocate for your child. The doctors don’t always know everything. Sometimes a condition is not as common and they simply do not have the experience. We know that we are experts on Luella, and it’s nice when you find a doctor who will actually listen to you. It’s okay to seek out a second or even a third opinion!

Get all the support you can.  Don’t be afraid to accept and ask for help from friends and family.  It’s also very helpful to connect with other families facing similar challenges.  Even if there isn’t a local support group there are many online support groups available.  There are many disease specific support groups and even groups for those with rare conditions that don’t have a specific diagnosis.

Is there anything else you'd like to add?

Luella has a blog - littleluella.blogspot.com.  If you’d like to keep up to date on what’s going on with Luella we invite you to check out her blog! Sign up for updates and follow along!

 

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  • Strengthening Families Program 10-14

    10/19/2017
    05:30PM — 08:00PM

    Strengthening Families Program 10-14 is a program for families with kids ages 10-14. This progra...


  • Coat Drop Off

    10/20/2017
    10:00AM — 09:00PM

    KELOLAND TV, Sioux Falls Lewis Drug stores and Montgomery's Furniture are teaming up to Keep KELO...


  • Weekly Morning Playgroups

    10/20/2017
    10:00AM — 12:00PM

    Gather your friends at our house to play and don't get your house messy. Our play groups are open...


  • Inflatables and PlayDome

    10/20/2017
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Scheel's Family Open Ice Skate

    10/20/2017
    11:45AM — 01:45PM

    Scheel's Family Open Ice Skate Open Skate Rates: Admission – $6.00 $4.00 for ages 12 and under...


  • Hoversten Orchard

    10/20/2017
    12:00PM

    Hope you are all ready for an amazing crop of apples this year...and there are LOTS!!! Can not wa...


  • Crafting with Nature Half Day Camp

    10/20/2017
    01:00PM — 05:30PM

    School is out for Sioux Falls public school students! Participants will enjoy their day off by so...


  • Etc. Expo for Her

    10/20/2017
    02:00PM — 09:00PM

    Etc. Expo for Her October 20 - 21. Friday : 2 pm - 9 pm Saturday : 9 am - 5 pm The first 200 a...


  • Weekday Open Gym and Game Room

    10/20/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/20/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/20/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/20/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/20/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Heartland Country Corn Maze

    10/20/2017
    05:00PM — 09:00PM

    Heartland Country Corn Maze offers fun for the whole family! Enjoy a walk through the wonderful n...


  • Kids Night Out Halloween Party

    10/20/2017
    06:00PM — 08:00PM

    School Age Event $25+tax/kid. RSVP Required. We will be watching a movie, having a snack and p...


  • Little All Stars

    10/20/2017
    06:30PM — 07:20PM

    -Ages: Walking - 6 years -10 punches per card -Cards do not expire


  • Haunted Farm Family Fun

    10/20/2017
    07:00PM — 10:00PM

    Haunted Farm Family Fun. 25 Screaming Acres of FUN and Fear. Baby Animals and Trails Rides. New -...


  • Tai Chi

    10/21/2017
    09:00AM — 10:00AM

    f you are looking for a way to reduce stress, consider tai chi (TIE-CHEE). Tai chi is a gracef...


  • Sioux Empire United Way Reading Festival

    10/21/2017
    09:00AM — 12:00PM

    This FREE event includes: A free book for every child who attends Children’s activities and cra...


  • Little All Stars

    10/21/2017
    09:00AM — 09:50AM

    -Ages: Walking - 6 years -10 punches per card -Cards do not expire


  • Etc. Expo for Her

    10/21/2017
    09:00AM — 05:00PM

    Etc. Expo for Her October 20 - 21. Friday : 2 pm - 9 pm Saturday : 9 am - 5 pm The first 200 a...


  • Coat Drop Off

    10/21/2017
    10:00AM — 09:00PM

    KELOLAND TV, Sioux Falls Lewis Drug stores and Montgomery's Furniture are teaming up to Keep KELO...


  • Youth Canvas Painting Workshop

    10/21/2017
    10:00AM — 12:00PM

    Join us at AR Workshop for a DIY class to make a Canvas Project! Choose from a Canvas Pillow Cove...


  • Inflatables and PlayDome

    10/21/2017
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Barnes and Noble Story Time

    10/21/2017
    11:00AM — 11:30AM

    Children's Storytime at Barnes and Noble. Oct 7 The Poky Little Puppy Oct 14 After the Fall Oc...


  • Hoversten Orchard

    10/21/2017
    12:00PM

    Hope you are all ready for an amazing crop of apples this year...and there are LOTS!!! Can not wa...


  • Heartland Country Corn Maze

    10/21/2017
    12:00PM — 09:00PM

    Heartland Country Corn Maze offers fun for the whole family! Enjoy a walk through the wonderful n...


  • Great Plains Zoo Bookworms Reading Program

    10/21/2017
    01:00PM — 01:30PM

    Bookworms Reading Program in the KELOLAND Education Center at the Great Plains Zoo. Join local ce...


  • Weekend Open Gym and Game Room

    10/21/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/21/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/21/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/21/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/21/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Saturday Cookie Decorating Days

    10/21/2017
    02:00PM — 04:30PM

    Call us by Friday 605-978-0991 and you can come in and decorate cookies on Saturday! We do cookie...


  • Mommies Matter: A Post Partum Support Group

    10/21/2017
    03:00PM — 04:00PM

    Monthly on the third Saturday


  • Mommies Matter: A Post Partum Support Group

    10/21/2017
    03:00PM — 06:00PM

    Welcome moms! I am so pleased you are interested in this group. My name is Rachel Gangle, I w...


  • Haunted Farm Family Fun

    10/21/2017
    07:00PM — 10:00PM

    Haunted Farm Family Fun. 25 Screaming Acres of FUN and Fear. Baby Animals and Trails Rides. New -...


  • SDSO Wicked Divas

    10/21/2017
    07:30PM — 10:00PM

    Join the SDSO for a Wicked-good performance of Diva showstoppers from the world of Broadway, oper...


  • Yoga

    10/22/2017
    09:30AM — 10:30AM

    Bring your yoga mat for a one-hour session in the warm, lush Butterfly House. It's a peaceful, se...


  • Coat Drop Off

    10/22/2017
    10:00AM — 09:00PM

    KELOLAND TV, Sioux Falls Lewis Drug stores and Montgomery's Furniture are teaming up to Keep KELO...


  • Inflatables and PlayDome

    10/22/2017
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Hoversten Orchard

    10/22/2017
    12:00PM

    Hope you are all ready for an amazing crop of apples this year...and there are LOTS!!! Can not wa...


  • Heartland Country Corn Maze

    10/22/2017
    12:00PM — 05:00PM

    Heartland Country Corn Maze offers fun for the whole family! Enjoy a walk through the wonderful n...


  • Gonna Get Wed

    10/22/2017
    12:00PM — 03:00PM

    All the magic of wedding planning under one roof! The GonnaGetWed Bridal Showcase has everything ...


  • Weekend Open Gym and Game Room

    10/22/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/22/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/22/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/22/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/22/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • SDSO Wicked Divas

    10/22/2017
    02:30PM — 05:00PM

    Join the SDSO for a Wicked-good performance of Diva showstoppers from the world of Broadway, oper...


  • SMG presents The Kidz Bop Kids Best Time Ever Tour on Sunday, October 22 at 3 pm.


  • Haunted Farm Family Fun

    10/22/2017
    07:00PM — 10:00PM

    Haunted Farm Family Fun. 25 Screaming Acres of FUN and Fear. Baby Animals and Trails Rides. New -...


  • Join us at the Museum of Visual Materials for these free activities. No registration is required ...


  • Little All Stars

    10/23/2017
    09:00AM — 09:50AM

    -Ages: Walking - 6 years -10 punches per card -Cards do not expire


  • Weekly Morning Playgroups

    10/23/2017
    10:00AM — 12:00PM

    Gather your friends at our house to play and don't get your house messy. Our play groups are open...


  • Story & Craft

    10/23/2017
    10:00AM — 10:30AM

    Join us for storytime and a simple craft! Age: Preschool Free Regular kids' activities will al...


  • Inflatables and PlayDome

    10/23/2017
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Scheel's Family Open Ice Skate

    10/23/2017
    11:00AM — 01:00PM

    Scheel's Family Open Ice Skate Open Skate Rates: Admission – $6.00 $4.00 for ages 12 and under...


  • Open Hockey

    10/23/2017
    11:00AM — 01:00PM

    Open Hockey Monday & Wednesdays 11-1:00 pm Friday 2:00-4:00 pm $10.00 - per session $100 -...


  • Weekday Open Gym and Game Room

    10/23/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/23/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/23/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/23/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/23/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Latches

    10/23/2017
    06:30PM — 08:00PM

    Breastfeeding takes a village. Nourish your baby in a safe, comfortable place, surrounded by your...


  • Tot Time

    10/24/2017
    05:30AM — 10:30AM

    Tot Time is designed for toddlers and other little tikes, 6 years and younger, who may not be com...


  • Dine Out for LifeScape

    10/24/2017
    08:00AM

    On Tuesday, October 24th, gather your friends, family, and coworkers together to Dine Out for Lif...


  • Join us at the Museum of Visual Materials for these free activities. No registration is required ...


  • Skyzone Toddler Time

    10/24/2017
    09:30AM — 11:30AM

    Toddler Time is a great shared experience for child and parent. A time for your little ones to di...


  • Storytime

    10/24/2017
    10:00AM — 10:30AM

    Bring your kids to a storytime every Tuesday at Child's Play Toys. It starts off with a few songs...


  • Weekly Morning Playgroups

    10/24/2017
    10:00AM — 12:00PM

    Gather your friends at our house to play and don't get your house messy. Our play groups are open...


  • Craft Time at Playgroup-Halloween Craft

    10/24/2017
    10:30AM — 12:00PM

    Once a month, we will be adding a little extra to your playgroup time. In addition to playing and...


  • Inflatables and PlayDome

    10/24/2017
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Weekday Open Gym and Game Room

    10/24/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/24/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/24/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/24/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/24/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Youth Canvas Painting Workshop

    10/24/2017
    03:30PM — 05:30PM

    Join us at AR Workshop for a DIY class to make a Canvas Project! Choose from a Canvas Pillow Cove...


  • Youth Canvas Painting Workshop

    10/24/2017
    03:30PM — 05:30PM

    Join us at AR Workshop for a DIY class to make a Canvas Project! Choose from a Canvas Pillow Cove...


  • Join us at the Museum of Visual Materials for these free activities. No registration is required ...


  • Little All Stars

    10/25/2017
    09:00AM — 09:50AM

    -Ages: Walking - 6 years -10 punches per card -Cards do not expire


  • Weekly Morning Playgroups

    10/25/2017
    10:00AM — 12:00PM

    Gather your friends at our house to play and don't get your house messy. Our play groups are open...


  • Craft Time at Playgroup-Halloween Craft

    10/25/2017
    10:30AM — 12:00PM

    Once a month, we will be adding a little extra to your playgroup time. In addition to playing and...


  • Inflatables and PlayDome

    10/25/2017
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Scheel's Family Open Ice Skate

    10/25/2017
    11:00AM — 01:00PM

    Scheel's Family Open Ice Skate Open Skate Rates: Admission – $6.00 $4.00 for ages 12 and under...


  • Open Hockey

    10/25/2017
    11:00AM — 01:00PM

    Open Hockey Monday & Wednesdays 11-1:00 pm Friday 2:00-4:00 pm $10.00 - per session $100 -...


  • Homeschool Art: Doodle, Sketch, Design I

    10/25/2017
    12:30PM — 02:30PM

    Ages 6-9 Continue Homeschool Art with a drawing class to practice essential skills and acquire k...


  • Homeschool Art: Doodle, Sketch, Design I

    10/25/2017
    12:30PM — 02:30PM

    Ages 10-12 Continue Homeschool Art with a drawing class to practice essential skills and acquire...


  • Milk Monologues

    10/25/2017
    01:00PM — 02:00PM

    Join Shelly (CLC) or Sarah if you are the mom of a non-mobile nursing baby. One of them will be a...


  • Weekday Open Gym and Game Room

    10/25/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/25/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/25/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/25/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/25/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weird Art Wednesday

    10/25/2017
    04:00PM — 06:00PM

    ALL AGES are welcome to join us for a different craft each week! Free!


  • Tot Time

    10/26/2017
    05:30AM — 10:30AM

    Tot Time is designed for toddlers and other little tikes, 6 years and younger, who may not be com...


  • Skyzone Toddler Time

    10/26/2017
    09:30AM — 11:30AM

    Toddler Time is a great shared experience for child and parent. A time for your little ones to di...


  • Little All Stars

    10/26/2017
    10:00AM — 10:50AM

    -Ages: Walking - 6 years -10 punches per card -Cards do not expire


  • Weekly Morning Playgroups

    10/26/2017
    10:00AM — 12:00PM

    Gather your friends at our house to play and don't get your house messy. Our play groups are open...


  • Inflatables and PlayDome

    10/26/2017
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Better Choices Better Health

    10/26/2017
    01:00PM — 03:30PM

    Better Choices, Better Health® SD is a chronic disease self-management workshop designed for adul...


  • New Baby & Me

    10/26/2017
    01:30PM — 03:30PM

    This group for new moms and their babies meets weekly. Moms can join in open discussion on topics...


  • Weekday Open Gym and Game Room

    10/26/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/26/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/26/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/26/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/26/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Cheers to Liberty

    10/26/2017
    05:00PM — 09:00PM

    Cheers to Liberty: An Event to Benefit the ACLU of South Dakota We’re back for another year of...


  • Strengthening Families Program 10-14

    10/26/2017
    05:30PM — 08:00PM

    Strengthening Families Program 10-14 is a program for families with kids ages 10-14. This progra...


  • Lifescape and Sunny Radiothon

    10/27/2017
    08:00AM — 10:00PM

    Tune in and be inspired on Sunny Radio 93.3FM in Sioux Falls and 97.1FM in Sioux City each day. E...


  • Coat Drop Off

    10/27/2017
    10:00AM — 09:00PM

    KELOLAND TV, Sioux Falls Lewis Drug stores and Montgomery's Furniture are teaming up to Keep KELO...


  • Weekly Morning Playgroups

    10/27/2017
    10:00AM — 12:00PM

    Gather your friends at our house to play and don't get your house messy. Our play groups are open...


  • Inflatables and PlayDome

    10/27/2017
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Autumn Festival

    10/27/2017
    11:00AM — 09:00PM

    Hundreds of the nation’s finest artists and crafters display and sell their handcrafted works. Ou...


  • Scheel's Family Open Ice Skate

    10/27/2017
    11:45AM — 01:45PM

    Scheel's Family Open Ice Skate Open Skate Rates: Admission – $6.00 $4.00 for ages 12 and under...


  • Weekday Open Gym and Game Room

    10/27/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/27/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/27/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/27/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/27/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Little All Stars

    10/27/2017
    06:30PM — 07:20PM

    -Ages: Walking - 6 years -10 punches per card -Cards do not expire


  • Haunted Farm Family Fun

    10/27/2017
    07:00PM — 10:00PM

    Haunted Farm Family Fun. 25 Screaming Acres of FUN and Fear. Baby Animals and Trails Rides. New -...


  • Tai Chi

    10/28/2017
    09:00AM — 10:00AM

    f you are looking for a way to reduce stress, consider tai chi (TIE-CHEE). Tai chi is a gracef...


  • Little All Stars

    10/28/2017
    09:00AM — 09:50AM

    -Ages: Walking - 6 years -10 punches per card -Cards do not expire


  • Autumn Festival

    10/28/2017
    09:00AM — 07:00PM

    Hundreds of the nation’s finest artists and crafters display and sell their handcrafted works. Ou...


  • Big Brother/Big Sister

    10/28/2017
    09:30AM — 11:00AM

    Big brothers and big sisters are important members of your family and they have their very own cl...


  • Coat Drop Off

    10/28/2017
    10:00AM — 09:00PM

    KELOLAND TV, Sioux Falls Lewis Drug stores and Montgomery's Furniture are teaming up to Keep KELO...


  • Youth Canvas Painting Workshop

    10/28/2017
    10:00AM — 12:00PM

    Join us at AR Workshop for a DIY class to make a Canvas Project! Choose from a Canvas Pillow Cove...


  • Toddler Gym

    10/28/2017
    10:30AM — 11:15AM

    These classes will introduce your child to basic movement skills and encourage them to work on ha...


  • Inflatables and PlayDome

    10/28/2017
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Barnes and Noble Story Time

    10/28/2017
    11:00AM — 11:30AM

    Children's Storytime at Barnes and Noble. Oct 7 The Poky Little Puppy Oct 14 After the Fall Oc...


  • Great Plains Zoo Bookworms Reading Program

    10/28/2017
    01:00PM — 01:30PM

    Bookworms Reading Program in the KELOLAND Education Center at the Great Plains Zoo. Join local ce...


  • Weekend Open Gym and Game Room

    10/28/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/28/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/28/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/28/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/28/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Defrightful Family Fun

    10/28/2017
    01:00PM — 03:00PM

    Get an early start on your celebration by dressing up in your favorite costume for an afternoon o...


  • Watercolor Class

    10/28/2017
    01:00PM — 03:00PM

    oin EastBank Art Gallery for an entry level watercolor landscape class Saturday, October 28 fro...


  • Saturday Cookie Decorating Days

    10/28/2017
    02:00PM — 04:30PM

    Call us by Friday 605-978-0991 and you can come in and decorate cookies on Saturday! We do cookie...


  • ZooBoo

    10/28/2017
    05:00PM — 07:00PM

    Check the ZooBoo hours on the Great Plains Zoo website. Every year, the Zoo thrills kids and adul...


  • Haunted Farm Family Fun

    10/28/2017
    07:00PM — 10:00PM

    Haunted Farm Family Fun. 25 Screaming Acres of FUN and Fear. Baby Animals and Trails Rides. New -...


  • Motown the Musical

    10/28/2017
    07:30PM — 10:00PM

    Mary W. Sommervold Hall It began as one man’s story… became everyone’s music… and is now Broadwa...


  • Yoga

    10/29/2017
    09:30AM — 10:30AM

    Bring your yoga mat for a one-hour session in the warm, lush Butterfly House. It's a peaceful, se...


  • Coat Drop Off

    10/29/2017
    10:00AM — 09:00PM

    KELOLAND TV, Sioux Falls Lewis Drug stores and Montgomery's Furniture are teaming up to Keep KELO...


  • Autumn Festival

    10/29/2017
    10:00AM — 05:00PM

    Hundreds of the nation’s finest artists and crafters display and sell their handcrafted works. Ou...


  • Inflatables and PlayDome

    10/29/2017
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Weekend Open Gym and Game Room

    10/29/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/29/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/29/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/29/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    10/29/2017
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Motown the Musical

    10/29/2017
    02:00PM — 05:00PM

    Mary W. Sommervold Hall. It began as one man’s story… became everyone’s music… and is now Broadwa...


  • Reformation 500 Hymn Festival

    10/29/2017
    03:00PM — 04:30PM

    First Lutheran Church invites the Sioux Falls community to a hymn festival celebrating the 500th ...


  • ZooBoo

    10/29/2017
    05:00PM — 07:00PM

    Check the ZooBoo hours on the Great Plains Zoo website. Every year, the Zoo thrills kids and adul...


  • Haunted Farm Family Fun

    10/29/2017
    07:00PM — 10:00PM

    Haunted Farm Family Fun. 25 Screaming Acres of FUN and Fear. Baby Animals and Trails Rides. New -...


  • Motown the Musical

    10/29/2017
    07:30PM — 10:00PM

    Mary W. Sommervold Hall It began as one man’s story… became everyone’s music… and is now Broadwa...


  • Join us at the Museum of Visual Materials for these free activities. No registration is required ...


  • Little All Stars

    10/30/2017
    09:00AM — 09:50AM

    -Ages: Walking - 6 years -10 punches per card -Cards do not expire


  • Weekly Morning Playgroups

    10/30/2017
    10:00AM — 12:00PM

    Gather your friends at our house to play and don't get your house messy. Our play groups are open...


  • Inflatables and PlayDome

    10/30/2017
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Scheel's Family Open Ice Skate

    10/30/2017
    11:00AM — 01:00PM

    Scheel's Family Open Ice Skate Open Skate Rates: Admission – $6.00 $4.00 for ages 12 and under...


  • Open Hockey

    10/30/2017
    11:00AM — 01:00PM

    Open Hockey Monday & Wednesdays 11-1:00 pm Friday 2:00-4:00 pm $10.00 - per session $100 -...


  • Weekday Open Gym and Game Room

    10/30/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/30/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/30/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/30/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/30/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Haunted Farm Family Fun

    10/30/2017
    07:00PM — 10:00PM

    Haunted Farm Family Fun. 25 Screaming Acres of FUN and Fear. Baby Animals and Trails Rides. New -...


  • Tot Time

    10/31/2017
    05:30AM — 10:30AM

    Tot Time is designed for toddlers and other little tikes, 6 years and younger, who may not be com...


  • Join us at the Museum of Visual Materials for these free activities. No registration is required ...


  • Skyzone Toddler Time

    10/31/2017
    09:30AM — 11:30AM

    Toddler Time is a great shared experience for child and parent. A time for your little ones to di...


  • Storytime

    10/31/2017
    10:00AM — 10:30AM

    Bring your kids to a storytime every Tuesday at Child's Play Toys. It starts off with a few songs...


  • Weekly Morning Playgroups

    10/31/2017
    10:00AM — 12:00PM

    Gather your friends at our house to play and don't get your house messy. Our play groups are open...


  • Inflatables and PlayDome

    10/31/2017
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Weekday Open Gym and Game Room

    10/31/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/31/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/31/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/31/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    10/31/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Haunted Farm Family Fun

    10/31/2017
    07:00PM — 10:00PM

    Haunted Farm Family Fun. 25 Screaming Acres of FUN and Fear. Baby Animals and Trails Rides. New -...


  • Join us at the Museum of Visual Materials for these free activities. No registration is required ...


  • Little All Stars

    11/01/2017
    09:00AM — 09:50AM

    -Ages: Walking - 6 years -10 punches per card -Cards do not expire


  • Weekly Morning Playgroups

    11/01/2017
    10:00AM — 12:00PM

    Gather your friends at our house to play and don't get your house messy. Our play groups are open...


  • Inflatables and PlayDome

    11/01/2017
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Scheel's Family Open Ice Skate

    11/01/2017
    11:00AM — 01:00PM

    Scheel's Family Open Ice Skate Open Skate Rates: Admission – $6.00 $4.00 for ages 12 and under...


  • Open Hockey

    11/01/2017
    11:00AM — 01:00PM

    Open Hockey Monday & Wednesdays 11-1:00 pm Friday 2:00-4:00 pm $10.00 - per session $100 -...


  • Milk Monologues

    11/01/2017
    01:00PM — 02:00PM

    Join Shelly (CLC) or Sarah if you are the mom of a non-mobile nursing baby. One of them will be a...


  • Weekday Open Gym and Game Room

    11/01/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    11/01/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    11/01/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    11/01/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    11/01/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weird Art Wednesday

    11/01/2017
    04:00PM — 06:00PM

    ALL AGES are welcome to join us for a different craft each week! Free!


  • Babywearing Basics (SF Babywearers)

    11/01/2017
    06:30PM — 08:00PM

    Monthly on the first Wednesday


  • Breastfeeding Preparation

    11/01/2017
    06:30PM — 08:30PM

    This class will assist you and your partner in understanding the breastfeeding process and the be...


  • Tot Time

    11/02/2017
    05:30AM — 10:30AM

    Tot Time is designed for toddlers and other little tikes, 6 years and younger, who may not be com...


  • 35th Annual North Central Heart Cardiac Symposium

    11/02/2017
    08:00AM — 05:00PM

    November 2 35th Annual North Central Heart Cardiac Symposium 8:00 am - 5:00 pm Location: Sioux...


  • Skyzone Toddler Time

    11/02/2017
    09:30AM — 11:30AM

    Toddler Time is a great shared experience for child and parent. A time for your little ones to di...


  • Little All Stars

    11/02/2017
    10:00AM — 10:50AM

    -Ages: Walking - 6 years -10 punches per card -Cards do not expire


  • Weekly Morning Playgroups

    11/02/2017
    10:00AM — 12:00PM

    Gather your friends at our house to play and don't get your house messy. Our play groups are open...


  • Inflatables and PlayDome

    11/02/2017
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Better Choices Better Health

    11/02/2017
    01:00PM — 03:30PM

    Better Choices, Better Health® SD is a chronic disease self-management workshop designed for adul...


  • New Baby & Me

    11/02/2017
    01:30PM — 03:30PM

    This group for new moms and their babies meets weekly. Moms can join in open discussion on topics...


  • Weekday Open Gym and Game Room

    11/02/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    11/02/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    11/02/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    11/02/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Weekday Open Gym and Game Room

    11/02/2017
    02:45PM — 06:00PM

    Different activities are scheduled daily, such as arts and crafts, open gyms and special events. ...


  • Strengthening Families Program 10-14

    11/02/2017
    05:30PM — 08:00PM

    Strengthening Families Program 10-14 is a program for families with kids ages 10-14. This progra...


  • Fall '17 Woman's Clothing Swap and Social

    11/02/2017
    06:00PM — 08:00PM

    Hey Fashionistas-WE'RE BACK! Ever wanted to raid the closets of Sioux Falls most fashionable w...