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Families That Inspire: Meet Braxon

09/24/2013 03:07PM ● Published by Anonymous

Photo courtesy of Jayne Erickson Photography

Gallery: Meet Braxon! [3 Images] Click any image to expand.

By: Kacey Reis


What made you decide to try sensory therapy?

We were introduced to sensory therapy when Braxon was diagnosed with SID (Sensory Integration Disorder) and Autistic tendencies. The woman who did his initial "screening" said that sensory wise Brax was literally "off the charts". I really did not want to use medication for many reasons, one being Braxon's age (4). I was willing to do any therapies, diet changes, and homework to develop true cognitive coping skills for Braxon. We were then referred to Robin Mills at Children's Care. After his evaluation and our discussion she thought sensory therapy was a good fit.

 

Why did you choose to bring Braxson’s siblings along to therapy?

Braxon has four siblings, one of which is his twin sister. Braxon's "spirit" is something we all as a family have to work with. The tantrums, isolation, and extreme mood swings can be very trying.  Braxon's daily behavior at times determined what activities we are able to do as a family. I have worked very hard to help my other children understand the "differences" that Braxon experiences. I explained that most things we feel, hear, see, or experience is just "more" for Braxon, and the things he does at Children's Care help bring that to a comfortable level. I had each sibling join us for a session hoping they could see the apparent and immediate difference it creates in Braxon. Robin was great about designating an interactive "helping" job for the joining sibling. I hoped they would listen and watch how Robin interacted with Braxon and that her tone and approach with him would be an example for harder times at home. I felt they might acquire more tolerance if they were able to have a part in the therapy process.

 

Do you do any activities at home in addition to scheduled sensory therapy sessions?

At home I try to maintain a structured schedule for Braxon while still allowing some fluctuation. His time at home is the time I have to make each lesson count. It is a lot of "deflating behavior" followed by a lot of talking and role-playing so he can see the whole picture of the situation. We keep a calendar where we write certain things or days that are going to be different so we can be talking about them before they take place. Doing that seems to help ease the transition the change requires Braxon to make.

 

We will, at times, do an incentive chart. I allow Braxson to make his own choices. For instance, if he is beginning a tantrum, I will tell him he can make a good choice, stop the bad behavior, and get a star for his chart, or he can continue and not get the star. I also let him help decide what the driving incentive is. That way I know it is something he wants. The charts also give me an overview of his behavior (struggles and strengths). Than I am able to relay that to Robin, and she reinforces with her own incentives and determines what things may be best for him to do in their sessions. At different times we have also included emotion/behavior flash cards, chiropractic care, and massage therapy. We use a homemade weighted blanket and toys that are "sensory driven" toys. The tool is dependent on the day or week’s needs. 

 

We also do pet therapy at home. Braxon is responsible for helping care for our dog, Izzy. He helps feed, water, walk, and brush her. She has a very calming effect on him. Also he deeply loves her and is very attached to her. She is sometimes his reason for choosing good behavior.

 

Are there any resources you would recommend?

In the beginning, I read everything I could get my hands on that explained SID. Once I felt I had a basic understanding of SID, I began to seek out other families, children, and parents that had learned to cope with cognitive skills instead of medication. I have since found a couple of blogs that I follow. These are words written by real people with a real "Braxon" in their own lives. That connection is sometimes in itself a comfort. I know that they "know." The last thing we have utilized is faith. Regardless of the "higher power" you choose, I have honestly seen Braxon at times be emotionally and physically relieved by just asking for (in our case) God's help. It is at times a way to take the pressure off of his shoulders. Behavior analysis is a constant for these kids, and I think it’s only fair that they at times are able to pass it over for even just the sleep hours or a family picnic.

 

What advice do you have for other parents of children with sensory challenges?

I would recommend seeking out any and all sources of information. Become educated so that when your child is struggling, you don't feel helpless and frustrated. Remember that this is actually harder on them than it is on us. We feel frustration, but they feel that and so much more. Our acceptance of them, just as they are, is so critical in beginning to set goals to achieve together. At those moments when you feel like you cannot handle it anymore, remember it is only a moment. We are exactly who they need! We are equipped or they wouldn't have been given to us. Then remember to mention that moment to your favorite OT next time you're there. Their help can change so much! 

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    01/31/2018
    11:00AM — 01:00PM

    Open Hockey Monday & Wednesdays 11-1:00 pm Friday 2:00-4:00 pm $10.00 - per session $100 -...


  • Scheel's Family Open Ice Skate

    01/31/2018
    11:00AM — 01:00PM

    Scheel's Family Open Ice Skate Open Skate Rates: Admission – $6.00 $4.00 for ages 12 and under...


  • Discount Skate Night

    01/31/2018
    06:00PM — 09:00PM

    Skate for $1.00 an hour every Wednesday during our Discount Skate Night! Wednesdays • 6-9pm A...


  • Open Skate Discount Night

    01/31/2018
    06:00PM — 09:00PM

    Open skating session for all ages at a discounted rate! Admission is $3. Regular skate rental fee...


  • A GENTLEMAN'S GUIDE TO LOVE & MURDER

    01/31/2018
    07:30PM — 10:00PM

    Getting away with murder can be so much fun… and there’s no better proof than the knock-‘em-dead ...


  • Tot Time

    02/01/2018
    05:30AM — 10:30AM

    Tot time is designed for toddlers and other little tikes, 6 years and younger, who may not be com...


  • Walking Program

    02/01/2018
    08:00AM — 10:00AM

    Location: Morningside Community Center, 2400 South Bahnson Avenue Walking is one of the best w...


  • 2018 Spring Classes

    02/01/2018
    08:00AM

    Register for spring classes at the Community Learning Center at your Washington Pavilion! We want...


  • Skyzone Toddler Time

    02/01/2018
    09:30AM — 11:30AM

    Toddler Time is a great shared experience for child and parent. A time for your little ones to di...


  • Toddler Time

    02/01/2018
    09:30AM — 11:30AM

    Toddler Time is a great shared experience for child and parent. A time for your little ones to di...


  • Little All Stars

    02/01/2018
    10:00AM — 10:50AM

    LITTLE ALL STARS (Walking to 6 years )


  • Wee Play & Learn

    02/01/2018
    10:00AM — 11:15AM

    Come with your child to play, meet other families, and talk one-on-one with child development exp...


  • Inflatables and PlayDome

    02/01/2018
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • New Baby & Me

    02/01/2018
    01:30PM — 03:30PM

    This group for new moms and their babies meets weekly. Moms can join in open discussion on topics...


  • Creative Kids

    02/01/2018
    03:15PM — 04:00PM

    Elementary-aged children are invited to join us for books, activities, and a craft. For more info...


  • S.T.E.A.M. -N- Thursdays

    02/01/2018
    03:30PM — 04:15PM

    Discover science, technology, engineering, art and math through activities. This month's theme: S...


  • A GENTLEMAN'S GUIDE TO LOVE & MURDER

    02/01/2018
    07:30PM — 10:00PM

    Getting away with murder can be so much fun… and there’s no better proof than the knock-‘em-dead ...


  • Walking Program

    02/02/2018
    08:00AM — 10:00AM

    Location: Morningside Community Center, 2400 South Bahnson Avenue Walking is one of the best w...


  • 2018 Spring Classes

    02/02/2018
    08:00AM

    Register for spring classes at the Community Learning Center at your Washington Pavilion! We want...


  • Inflatables and PlayDome

    02/02/2018
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • First Free Friday

    02/02/2018
    05:00PM — 08:00PM

    Join us for Free First Fridays, whether you are new to the area, new to the Pavilion, or even a r...


  • Little All Stars

    02/02/2018
    06:30PM — 07:20PM

    LITTLE ALL STARS (Walking to 6 years )


  • Teen Night at Skate City

    02/02/2018
    08:00PM — 11:00PM

    This session is directed toward, but not reserved for, middle to high school aged skaters.


  • MallWalk 2018

    02/03/2018
    08:00AM — 10:30AM

    Pre-register your team for MallWalk 24--Saturday, February 3rd at the Empire Mall! Here's how! ...


  • Walking Program

    02/03/2018
    08:00AM — 10:00AM

    Location: Morningside Community Center, 2400 South Bahnson Avenue Walking is one of the best w...


  • MallWalk

    02/03/2018
    08:00AM — 11:30AM

    Join us as we Walk and Roll for people supported at LifeScape. 100% of Mall Walk proceeds will he...


  • 2018 Spring Classes

    02/03/2018
    08:00AM

    Register for spring classes at the Community Learning Center at your Washington Pavilion! We want...


  • Ice Fishing 101

    02/03/2018
    09:00AM — 10:00AM

    Winter is the perfect season to explore your frozen waterways while enjoying the cool calming atm...


  • Little All Stars

    02/03/2018
    09:00AM — 09:50AM

    LITTLE ALL STARS (Walking to 6 years )


  • Tai Chi

    02/03/2018
    09:00AM — 10:00AM

    f you are looking for a way to reduce stress, consider tai chi (TIE-CHEE). Tai chi is a gracef...


  • Decorating Days

    02/03/2018
    10:00AM — 02:00PM

    Call us by Friday and you can come in and decorate cookies on Saturday! We do cookie decorati...


  • Morning Skate

    02/03/2018
    10:00AM — 12:00PM

    This session is directed toward, but not reserved for, beginner skaters and their parents.


  • Saturday Morning Family Skate

    02/03/2018
    10:00AM — 12:00PM

    Spend Saturday morning with the whole family at Skate City! Parents skate for FREE admission with...


  • Pioneer Day

    02/03/2018
    10:30AM — 12:00PM

    Bring the family to experience our prairie heritage. Churn butter, make newspaper twists and butt...


  • Inflatables and PlayDome

    02/03/2018
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Open Gym

    02/03/2018
    12:00PM — 01:00PM

    OPEN GYM (Ages 6-18) $80/10 punch card


  • Bookworms Reading Program

    02/03/2018
    01:00PM — 01:30PM

    Join local celebrities and Zoo Educators for a free story time and animal encounter. Bookworms Re...


  • Weekend Open Gym and Game Room

    02/03/2018
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    02/03/2018
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    02/03/2018
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    02/03/2018
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    02/03/2018
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Saturday Cookie Decorating Days

    02/03/2018
    02:00PM — 04:30PM

    Call us by Friday 605-978-0991 and you can come in and decorate cookies on Saturday! We do cookie...


  • SUPER SATURDAY

    02/03/2018
    06:00PM — 08:00PM

    Join us for SUPER SATURDAY each Saturday from 6-8pm! 2 hours of RUNNING, JUMPING, PLAYING FUN! ...


  • Walking Program

    02/04/2018
    08:00AM — 10:00AM

    Location: Morningside Community Center, 2400 South Bahnson Avenue Walking is one of the best w...


  • 2018 Spring Classes

    02/04/2018
    08:00AM

    Register for spring classes at the Community Learning Center at your Washington Pavilion! We want...


  • Sensory Sensitive Sundays

    02/04/2018
    09:00AM — 11:00AM

    Chuck E. Cheese's is proud to support families who have children with autism and special needs. W...


  • Sensory Sensitive Sundays

    02/04/2018
    09:00AM — 11:00AM

    Join us from 9AM-11AM Chuck E. Cheese's now offers a sensory-friendly experience on the first Su...


  • Yoga

    02/04/2018
    09:30AM — 10:30AM

    Bring your yoga mat for a one-hour session in the warm, lush Butterfly House. It's a peaceful, se...


  • Inflatables and PlayDome

    02/04/2018
    11:00AM — 08:00PM

    The County Fair has family entertainment for kids of any age—from our inflatables and Play Dome j...


  • Weekend Open Gym and Game Room

    02/04/2018
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    02/04/2018
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    02/04/2018
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    02/04/2018
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...


  • Weekend Open Gym and Game Room

    02/04/2018
    01:00PM — 05:00PM

    Open gyms are a time for people to drop in to play basketball. If space allows, volleyball may al...